URGENT UPDATE: Renowned disability rights activist and author Alice Wong has tragically passed away at the age of 51. Wong died on Friday, October 13, 2023, due to an infection at a hospital in San Francisco, according to close friend Sandy Ho.
Wong’s death marks a significant loss for the disability justice movement. Described as a “luminary,” she dedicated her life to advocating for individuals with disabilities, particularly those from marginalized communities, including people of color, LGBTQ individuals, and immigrants. Her work emphasized the importance of autonomy and the right to live freely.
Diagnosed as a child with a progressive neuromuscular disability, Wong utilized a powered wheelchair and an assistive breathing device. Her experiences fueled her activism, inspiring countless others along the way. In a heartfelt statement shared on social media, Wong reflected on her journey, acknowledging the friendships and mentors who helped her thrive. “We need more stories about us and our culture,” she expressed, underscoring her commitment to visibility and representation.
Wong was the founder of the Disability Visibility Project, a blog that amplified the voices and stories of people with disabilities. Her published works, including her memoir, “Year of the Tiger: An Activist’s Life,” combined humor with deep insights into the challenges faced by disabled individuals. Ho emphasized that Wong was not only a brilliant writer but also a fierce advocate who believed in the power of individuals to “speak for themselves.”
In recognition of her groundbreaking contributions, Wong was selected as a fellow of the John D. and Catherine T. MacArthur Foundation for the class of 2024, also known as the “genius grant.” This accolade highlights her significant impact on the disability rights landscape.
Wong’s legacy will endure as a testament to the importance of advocacy and representation for people with disabilities. Her determination to push for a world where everyone can live freely and authentically has inspired many.
As the community mourns this profound loss, the call for greater awareness and inclusion in society remains more urgent than ever. Wong’s vision of a more equitable world for people with disabilities serves as a guiding light for future generations.
Authorities and friends encourage those affected by Wong’s work to continue sharing their stories and advocating for change, ensuring her mission lives on.
